Stikkordarkiv: Children with ME

A young hero

Skrevet 2. desember 2017 av gansem

Truls, a young boy of 12 years, has ME. Because of his ME, Truls is rarely able to leave home.  But when his doctor Kristian Sommerfelt asked for his help in educating medical students, Truls didn’t hesitate at all. He … Les videre →

Publisert i Barn og unge med ME, Fra ungdom, ME | Merket med , , , , | 3 kommentarer

The Shoes

Skrevet 29. mai 2016 av ME-foreldrene

A pair of shoes on the door mat. They remained there for a long time. So long that my mind refused to remember how long. Lonely, desolated, waiting… Every time I walked through the doorway I saw the shoes and … Les videre →

Publisert i ME, Personal from parents of children with ME | Merket med , | 1 kommentar

Conclusion: M.E.

Skrevet 1. mai 2015 av ME-foreldrene

The conclusion is clear. Our boy has been diagnosed with ME. He has symptoms from all over his body, pain in his muscles and bones, he has disturbed sleep and temperature fluctuations. Among other things. The doctor considers treatment that … Les videre →

Publisert i ME, Personal from parents of children with ME | Merket med , , , , | 1 kommentar

I didn’t believe it

Skrevet 24. april 2015 av gansem

I didn’t believe that a 12-year old boy could get sick and sicker just by going to school. That first he had to skip Physical Education  (this boy loved football!), then more and more classes until there were no classes … Les videre →

Publisert i Barn og unge med ME, ME, Personal from parents of children with ME | Merket med , | 8 kommentarer

A proposal – en invitasjon

Skrevet 8. februar 2015 av ME-foreldrene

Opprinnelig lagt ut på Utting-Wolff Spouts:
This post is not what you might have expected; it even has a working title: Growing up with ME: surviving childhood and becoming an adult while chronically ill We would like to invite you…

Publisert i Barn og unge med ME | Merket med , , , , | Legg igjen en kommentar

Letter to the King

Skrevet 5. februar 2015 av gansem

Letter to King Harald of Norway from Martin and 58 other young people with M.E. ME mum’s confessions proudly presents an important letter to King Harald from Martin (17). The letter is also signed by 58 other children and youngsters … Les videre →

Publisert i Barn og unge med ME, Fra ungdom, Medieoppslag | Merket med , , , , | 12 kommentarer

Dear Doctor

Skrevet 3. februar 2015 av ME-foreldrene

Kind teachers want to do their best Headmasters need their reports The doctor, scratching his head, Says:  Fortunately I’ll soon be retiring You say you hurt You say you are in pain But I can’t see it I try to … Les videre →

Publisert i Personal from parents of children with ME | Merket med , , , | Legg igjen en kommentar

The Diagnosis

Skrevet 20. november 2014 av gansem

I remember thinking, the day I drove back home from the hospital, carrying a piece of paper with the diagnosis ME written on it, driving along with my boy next to me in the car seat. He was not able to sit … Les videre →

Publisert i Personal from parents of children with ME | Merket med , , , , | Legg igjen en kommentar

When life was put on hold

Skrevet 3. november 2014 av ME-foreldrene

Being the mother of two children with ME is both demanding and lonely. But this is not the most difficult part of it. We have translated an interview from Norwegian paper Laagendalsposten to English. Click to see Norwegian original: Gro … Les videre →

Publisert i Personal from parents of children with ME | Merket med , , , , , | Legg igjen en kommentar

My Beloved Child

Skrevet 26. juli 2014 av ME-foreldrene

Norwegian original ”Isn’t she lovely. Isn’t she wonderful. Isn’t she precious …” * My wishes for you are skinned knees and getting sunburnt. Exam stress and a broken heart. Not because I wish you harm, but because I with all my … Les videre →

Publisert i Personal from parents of children with ME, Personlig fra pårørende | Merket med , , , | 4 kommentarer