Kategoriarkiv: Personal from parents of children with ME

A Christmas wish

Dear friends and family, If you know someone with M.E., you are probably accustomed to their cancellations at the last minute or to them being late, the lack of invitations to their home and their passivity in most contexts. Maybe … Les videre

Publisert i ME, Personal from parents of children with ME | Legg igjen en kommentar

The Shoes

A pair of shoes on the door mat. They remained there for a long time. So long that my mind refused to remember how long. Lonely, desolated, waiting… Every time I walked through the doorway I saw the shoes and … Les videre

Publisert i ME, Personal from parents of children with ME | Merket med , | 1 kommentar

Conclusion: M.E.

The conclusion is clear. Our boy has been diagnosed with ME. He has symptoms from all over his body, pain in his muscles and bones, he has disturbed sleep and temperature fluctuations. Among other things. The doctor considers treatment that … Les videre

Publisert i ME, Personal from parents of children with ME | Merket med , , , , | 1 kommentar

I didn’t believe it

I didn’t believe that a 12-year old boy could get sick and sicker just by going to school. That first he had to skip Physical Education  (this boy loved football!), then more and more classes until there were no classes … Les videre

Publisert i Barn og unge med ME, ME, Personal from parents of children with ME | Merket med , | 8 kommentarer

Dear Doctor

Kind teachers want to do their best Headmasters need their reports The doctor, scratching his head, Says:  Fortunately I’ll soon be retiring You say you hurt You say you are in pain But I can’t see it I try to … Les videre

Publisert i Personal from parents of children with ME | Merket med , , , | Legg igjen en kommentar

The Diagnosis

I remember thinking, the day I drove back home from the hospital, carrying a piece of paper with the diagnosis ME written on it, driving along with my boy next to me in the car seat. He was not able to sit … Les videre

Publisert i Personal from parents of children with ME | Merket med , , , , | Legg igjen en kommentar

When life was put on hold

Being the mother of two children with ME is both demanding and lonely. But this is not the most difficult part of it. We have translated an interview from Norwegian paper Laagendalsposten to English. Click to see Norwegian original: Gro … Les videre

Publisert i Personal from parents of children with ME | Merket med , , , , , | Legg igjen en kommentar