I didn’t believe that a 12-year old boy could get sick and sicker just by going to school. That first he had to skip Physical Education (this boy loved football!), then more and more classes until there were no classes left to skip.
I didn’t think it was possible for a 12-year old under any circumstance to end up not being able to attend school a single day for the entire semester. A 12-year old who up until 6 months ago seemed happy, enjoyed school and got good grades. And I didn’t think that he still – two years later – would be absent from his class.
I did not at all think that a 12-year old who developed normally until he was 12 years, six months, seven weeks and four days old, would seem to suddenly have developed severe dyslexia and even more severe dyscalculia. That the multiplication tables could get deleted from a brain which had effortlessly saved them without trouble.
I didn’t believe that a 12-year old could have pain just about in every part of his body or that he would need to be supported to get to the toilet and back again.
It never occurred to me that a 12-year old could get so sick just by having friends over that I would find him in tears in the bathroom and have to tell his friends to leave – in the middle of a fun game. They had been over for half an hour. – Or that it would continue like this for the next two years to come.
I didn’t believe that a 12-year old could become really sick only by normal background noise at a restaurant. So sick we had to leave our meal before dessert. Before his favourite food was half eaten. The noise hurt so much he had to run out of the restaurant and wait outside.
I didn’t believe that a 12-year old could be so sick that he found it ok to be in a wheelchair while shopping. «This way everybody can see that I am sick»
I certainly didn’t believe that a 12-year old, after being brought to school in tears and exhaustion for three months – until both his doctor and family realised that he had to quit – could be so sick and exhausted that he resembled someone with severe aphasia. That he would even lose his words. And that he would lose them again every time he would over-exert himself for the next two years. That is – there are words coming out of his mouth, but the words have no meaning. They don’t make sense and it is impossible to understand if he is trying to communicate that he is hungry, thirsty or if he needs the room to be cooler or warmer.
I never thought that a 12-year old could be so sick that he wasn’t able to take a shower until he was 14. Or that his parents would have to brush his teeth for him, like when he was a toddler. In bed. Lying down.
The 12-year old is now a 14-year old. He is still sick. Maybe even worse, actually. He has had a fever for five months. You don’t belive it? No. I didn’t believe it either.
I didn’t believe it.
It never even occurred to me.
Not until I experienced this happening to my own son.
By a former non-believer, waiting for what is going to happen the next two years.
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