Månedlig arkiv: januar 2014

Anonymity

We used to be anonymous. Behind closed doors and covered windows. Criticism and gossip. Accused and neglected! The lack of knowledge ruled. Almost nobody knew. We tried to keep our heads above the surface. Those we turned to for help … Les videre

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Tiptoeing around the house

Morning of January 2.  New Year.  A happy new year? Fresh opportunities?  New start? New plans? Or the same as in the past He leaves his room.  Like in a trance. He does not look me in the eye.  The … Les videre

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It will get better

Are you tired?  Get some rest! It will get better. A lot of people think that having ME means that you are just really, really tired.  That you can rest for a while and it will get better.  Some people … Les videre

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Boredom

Sometimes I need to rest.  If I got up extra early one morning, had a busy day at work, or if I just were at home on standby with my son.  Whatever the reason, my head is tired.  My head … Les videre

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The joy of anticipation

Summer holidays, fall break, winter break – birthdays, Christmas and New Year. These are times and days we look forward to – or not. Looking forward to something – to have expectations – anticipate something that gives us a break … Les videre

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Mange små bekker

Hva er verst? Er det det at kroppen reagerer med voldsom utmattelse på den minste lille fysiske eller kognitive anstrengelse? At selv de mest hverdagslige aktiviteter – som det å kle seg – forverrer symptomene? Er det det at resultatet av «anstrengelsen» ikke bare kan komme umiddelbart – men også først etter en dag eller flere? At man vanskelig kan vite om man burde stanset tidligere, for å unngå en kraftig forverring? Er det det at grensen for … Les videre

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Fundraising!

We are fundraising to help a 14-year old girl who suffers from severe ME Norsk versjon her In Norway right now we have one of the most severe cases this country has seen when it comes to ME.  A 14-year … Les videre

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